If you are a woman with congenital heart disease (CHD), choosing safe birth control is an important part of family planning. It is important that all women with CHD discuss contraception and pregnancy options with an adult congenital heart disease (ACHD) specialist in collaboration with experts in obstetrics and gynecology to choose the best options for them.

In Canada, there are 16 adult CHD centres, each within a hospital setting in major cities across Canada. If you are not being seen by an ACHD specialist, speak to your cardiologist or primary healthcare provider about your specific birth control considerations.

 

Work with your healthcare team to figure out what's best for you. Don't be afraid to ask questions.
Reproductive health considerations

For women who are at risk of health issues due to their CHD, contraceptive choices are based on:

  • health and medical history
  • age
  • pregnancy risk
  • benefits, risks and effectiveness of each method
  • individual preference and lifestyle


Birth control methods
  1. hormonal – birth control pills, injections, skin patch or implant, vaginal ring
    · combined estrogen and progesterone
    · progesterone only (IUD)
  2. barrier methods
    · condom
    · diaphragm
    · cervical cap
    · contraceptive sponge
  3. fertility awareness based methods
    · tracking menstrual cycle on a calendar
    · LH (luteinizing hormone) strips
    · body temperature method
    · cervical mucus method
    · withdrawal
  4. surgical sterilization – a permanent form of contraception
1. Hormonal birth control

Combined hormonal contraceptives

The most common hormonal contraceptives are a combination of the hormones estrogen and progesterone. They can be taken by pill, skin patch, injection or vaginal rings. Estrogens increase the risk for blood clots, so they might not be the best choice if you have complex CHD.

Estrogen-based contraception

This form of birth control might not be the right choice if any of the following apply to you:

  • risk or history of blood clots
  • migraine with aura
  • uncontrolled high blood pressure
  • over 35 years of age
  • obese
  • are a smoker
  • metallic valves
  • poor heart function
  • liver disease
  • cyanosis (bluish colour of skin due to lack of oxygen)
  • heart rhythm problems

Women with certain heart conditions, like cyanotic congenital heart disease, should avoid using birth control that contains estrogen. It’s also not the best option for women with mechanical heart valves or a single ventricle in their heart. 

If you have CHD, it is always best to discuss your options with your primary healthcare provider to find the safest method for you. 

Progestin-only contraceptives

  • Progestin-only birth control pills are often safer for women with CHD because they have a lower risk of blood clots. This pill may be less effective than combined estrogen and progesterone pills and may need to be used in combination with another type of contraceptive method. For women with CHD, it is important to consult your healthcare team before use.
  • Plan B – or the morning-after pill – is an emergency contraceptive if you have had unprotected sex and want to avoid pregnancy. It contains only progestin and the risk of blood clots is low. It is generally safe for women with CHD of any severity. For women with CHD, it is important to consult your healthcare team before use.
  • Injections and implants
    • An injection of progesterone (Depo-Provera) directly into a muscle every three months to prevent pregnancy is typically suitable for women with CHD.
    • Low-dose progestin implants inserted under the skin of the upper arm provide contraceptive protection for three to five years. They can be easily removed if your family plans change. They are generally safer for women with CHD. This type of device may carry an increased risk for infection after implantation. Women with CHD should discuss the need for antibiotics to help prevent infection with their healthcare team before use.
2. IUD (Intrauterine devices)

An IUD is a long-acting, effective and reversible method of birth control. The IUD is a small, flexible coil that is inserted into your uterus. It releases progesterone to prevent pregnancy for up to five years. Implantation and removal may cause low blood pressure, so you might have to have it implanted in the hospital if you have complex CHD. An IUD may carry an increased risk for infection in the first several months after implantation. Women with CHD should discuss the need for antibiotics to help prevent infection with their healthcare team before use. 

3. Barrier methods

Barrier methods include the condom, diaphragm, cervical cap and contraceptive sponge, which all work differently and have varying levels of effectiveness. Spermicides must be used in combination with other barrier methods. Since barrier methods can result in varied effectiveness, it is not recommended for women with high-risk CHD.

4. Fertility awareness-based methods

With fertility awareness, you learn how to interpret your body’s natural signs and symptoms like changes in cervical mucus and basal body temperature to identify your fertile window (the days when you are most likely to become pregnant). During this time, you avoid unprotected sex. This form of birth control is non-hormonal and does not pose any direct risks, however, its effectiveness depends on the cooperation of users (partners in a sexual relationship). It’s highly recommended that you work with a trained practitioner to ensure support, knowledge and efficacy.

5. Permanent sterilization / surgical sterilization

Tubal ligation (often referred to as “getting your tubes tied”) and tubal implants are two options for permanent birth control that involve closing or blocking the fallopian tubes to prevent pregnancy. These procedures are done laparoscopically under general anesthetic (putting you to sleep), which can carry some health risks, especially for women with CHD. Newer methods are being developed using local or spinal anesthesia (leaving you awake), which might be safer for some individuals. For women with serious heart conditions, permanent birth control (sterilization) may have to be considered and should be based on discussions with your healthcare team.  .

Vasectomy is an effective method of birth control for men without any risks for women with CHD. It is important for you to talk about how this will affect your partner. 

Key messages
  • Choosing safe birth control is an important part of family planning.
  • All women with CHD should discuss contraception and pregnancy with a healthcare professional with expertise in pregnancy for women with CHD.
  • Hormonal forms of birth control and implanted devices may not be recommended for some women with CHD because of their individual risk factors.
Related information

More information about birth control from the Adult Congenital Heart Association (US).

To learn more about CHD, check our other webpages.

This  information is an updated version of a previous article written by Shelagh Ross – who lives with congenital heart disease – in collaboration with cardiologists Jack Colman and Lorna Swan, ACHD program, Peter Munk Cardiac Centre and University of Toronto.

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